安新 training camp
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Brief Title
安新 training camp -
Official Title
The Mermaid training camp -
Brief Summary
[2018 Recruiting]The Mermaid training camp will recruit 100 RTT girls,each girl will be provided two weeks home multi-sensory environment of motor skill training, communication behavior intervention training. -
Detailed Description
The Mermaid Training Camp is a participatory training course for RTT family. Training camp from the biomedical, feeding care, motor development, communication &cognition, psychological construction, set up more than 42 courses for children and parents, including knowledge of the disease, the development of intervention programs to provide one-on-one practical guidance. Let the RTT parents learn the knowledge of the disease, including the four stages of development and the characteristics of the four stages of development, sleep, mood, gastrointestinal, respiratory problems, and possible treatment, healing methods to rationally build confidence; Professional assessment, and based on the assessment of the development plan, access to the child's personalized feeding care, motor skill development,communication intervention and other aspects of the plan, as well as parents of learning, training, capacity development plan; Through one-on-one practice guide, take rehabilitation program home, to carry out lasting and effective rehabilitation.
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Study Type
interventional -
Study Phase
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Study Design
The training camp will begin on January 8, 2018 in Shenzhen, Guangdong, with five families participating in each period，and each period will last two weeks. -
Condition
Rett Syndrome -
Intervention
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Publications
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Recruitment Status
retuiting -
Recruitment Posted Date
2017-08-14 -
Estimated Completion Date
2017-12-31 -
Completion Date
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Sample size
100 -
Gender
woman -
Accepts Healthy Volunteers
No
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Min Age
1 -
Max Age
20 -
Eligibility Criteria
Diagnosed Rett Syndrome with genetics -
Contacts
info@rscri.org
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Number
RSCRI-AP-0001 -
Has Data Monitoring Committee
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Responsible Party
Rett syndrome comprehensive reaserch institute -
Study Sponsor
Rett syndrome comprehensive reaserch institute -
Collaborators
Shenzhen SIQI Rehabilitation Center -
Investigators
Jia Li from RSCRI -
Countries of recruitment and research settings
Shenzhen China
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First Posted Date
2017-08-14 -
Last Update Posted Date
2017-10-31 -
Start Date
2018-01-08 -
Original Primary Outcome Measures
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Change History
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Completion Date
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Outcome Measures
