Logo
  • Home
  • Research Project
  • About Us
  • Take Action
  • CN
  • Login
  • Register
  • Home
  • Research Project
  • About Us
  • Take Action
  • CN
  • Login
  • Register

安新 training camp

Descriptive Information
  • Brief Title  
    安新 training camp
  • Official Title  
    The Mermaid training camp
  • Brief Summary
    [2018 Recruiting]The Mermaid training camp will recruit 100 RTT girls,each girl will be provided two weeks home multi-sensory environment of motor skill training, communication behavior intervention training.
  • Detailed Description

    The Mermaid Training Camp is a participatory training course for RTT family. Training camp from the biomedical, feeding care, motor development, communication &cognition, psychological construction, set up more than 42  courses for children and parents, including knowledge of the disease, the development of intervention programs to provide one-on-one practical guidance. Let the RTT parents learn the knowledge of the disease, including the four stages of development and the characteristics of the four stages of development, sleep, mood, gastrointestinal, respiratory problems, and possible treatment, healing methods to rationally build confidence; Professional assessment, and based on the assessment of the development plan, access to the child's personalized feeding care, motor skill development,communication intervention and other aspects of the plan, as well as parents of learning, training, capacity development plan; Through one-on-one practice guide, take rehabilitation program  home, to carry out lasting and effective rehabilitation.

  • Study Type 
    interventional
  • Study Phase
  • Study Design  
    The training camp will begin on January 8, 2018 in Shenzhen, Guangdong, with five families participating in each period,and each period will last two weeks.
  • Condition 
    Rett Syndrome
  • Intervention
  • Publications
Recruitment Information
  • Recruitment Status 
    retuiting
  • Recruitment Posted Date
    2017-08-14
  • Estimated Completion Date
    2017-12-31
  • Completion Date
  • Sample size
    100
  • Gender
    woman
  • Accepts Healthy Volunteers
    No
  • Min Age
    1
  • Max Age
    20
  • Eligibility Criteria  
    Diagnosed Rett Syndrome with genetics
  • Contacts  
    info@rscri.org
Administrative Information
  • Number
    RSCRI-AP-0001
  • Has Data Monitoring Committee
  • Responsible Party
    Rett syndrome comprehensive reaserch institute
  • Study Sponsor
    Rett syndrome comprehensive reaserch institute
  • Collaborators
    Shenzhen SIQI Rehabilitation Center
  • Investigators
    Jia Li from RSCRI
  • Countries of recruitment and research settings
    Shenzhen China
Progress Information
  • First Posted Date  
    2017-08-14
  • Last Update Posted Date
    2017-10-31
  • Start Date  
    2018-01-08
  • Original Primary Outcome Measures  
  • Change History
  • Completion Date
  • Outcome Measures  
LINKS
facebook Qcode
Logo
Wetchat
SPECIAL THANKS TO

Yumi
Linktion

WAYS TO GET IN TOUCH
  • E-mail:Info@rscri.org
  • Tel:0755-28264211
  • Web:www.rscri.org
  • Logo
本网站运行在腾讯云 Copyright @2017-2019 RSCRI. All Rights Reserved. 粤ICP备15095966号-1
Contact US