RTT AAC Communication Project Phase I
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Brief Title
RTT AAC Communication Project Phase I -
Official Title
Communication Behavior and AAC Intervention in Rett Syndrome (Phase I) -
Brief Summary
[2017 comleted] Observes and intervenes communication behavior in a multi-sensory environment in four children with Rett Syndrome. Through the AAC participation model, with the support of communication partners (one on one teacher), RTT children and communication partners have been significantly improved communication skills. -
Detailed Description
AAC (Augmentative and Alternative Communication) approach has long been applied in European and American countries, and more and more studies have shown that AAC can help communicate people with disabilities to develop communication skills. From 2016, the special education field also began to pay attention to AAC in special child education intervention in the application in China. Rett syndrome as a typical representative of children with multiple disabilities, AAC's approach has become a strong expectation of leading them across communication barriers and helping them overcome learning disabilities. Because of the multiple barriers, the daily life of children with RTT are seriously affected by the disease, so they are in urgent need of evidence-based treatment programs based on the effectiveness of the study. This project will carry out a three-month intervention training for four children with RTT. The children will receive half-day one-on-one and group classes in a multi-sensory environment. In the AAC participatory model, one-on-one intervening teachers assume the role of communication partners, and both RTT girls and communication partners are both assessed and trained for communication skills. The results of this project will also benefit other types of multiple barriers.
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Study Type
interventional -
Study Phase
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Study Design
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Condition
Rett Syndrome -
Intervention
Programed -
Publications
The preliminary results of the project: 1.Rett syndrome need AAC intervention services; 2. AAC intervention need the communication partners to participate in learning, that will be more effective; 3.Since the severity of the children with Rett syndrome was varied, the needs of AAC service were also varied from case to case. Based on the finding of the study, those children encountered many opportunity barriers, including policy, practice, attitude, knowledge, and skill barriers.; 4. Multi-sensory natural circumstances are more effective; 5.Rett syndrome girls's social advantages makes group classes more effect; 6, Rett syndrome girls and communication partners have been significantly improved communication skills.
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Recruitment Status
completed -
Recruitment Posted Date
2016-09-28 -
Estimated Completion Date
2016-10-15 -
Completion Date
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Sample size
4 -
Gender
woman -
Accepts Healthy Volunteers
No
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Min Age
2 -
Max Age
8 -
Eligibility Criteria
1. Diagnosed Rett Syndrome with genetics 2. 2-8 years old -
Contacts
info@rscri.org
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Number
RSCRI-RP-0002 -
Has Data Monitoring Committee
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Responsible Party
Rett syndrome comprehensive reaserch institute -
Study Sponsor
Rett syndrome comprehensive reaserch institute -
Collaborators
Rett syndrome comprehensive reaserch institute;David Wang from Taiwan Donghua University ;Shenzhen SIQI Rehabilitation Center -
Investigators
Jia Li from RSCRI -
Countries of recruitment and research settings
Shenzhen China
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First Posted Date
2016-09-28 -
Last Update Posted Date
2017-10-31 -
Start Date
2016-10-24 -
Original Primary Outcome Measures
Communication skills assessment indicators -
Change History
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Completion Date
2016-01-24 -
Outcome Measures
