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RTT AAC Communication Project Phase I

Descriptive Information
  • Brief Title  
    RTT AAC Communication Project Phase I
  • Official Title  
    Communication Behavior and AAC Intervention in Rett Syndrome (Phase I)
  • Brief Summary
    [2017 comleted] Observes and intervenes communication behavior in a multi-sensory environment in four children with Rett Syndrome. Through the AAC participation model, with the support of communication partners (one on one teacher), RTT children and communication partners have been significantly improved communication skills.
  • Detailed Description

    AAC (Augmentative and Alternative Communication) approach has long been applied in European and American countries, and more and more studies have shown that AAC can help communicate people with disabilities to develop communication skills. From 2016, the special education field also began to pay attention to AAC in special child education intervention in the application in China. Rett syndrome as a typical representative of children with multiple disabilities, AAC's approach has become a strong expectation of leading them across communication barriers and helping them overcome learning disabilities. Because of the multiple barriers, the daily life of children with RTT are seriously affected by the disease, so they are in urgent need of evidence-based treatment programs based on the effectiveness of the study. This project will carry out a three-month intervention training for four children with RTT. The children will receive half-day one-on-one and group classes in a multi-sensory environment. In the AAC participatory model, one-on-one intervening teachers assume the role of communication partners, and both RTT girls and communication partners are both assessed and trained for communication skills. The results of this project will also benefit other types of multiple barriers. 

  • Study Type 
    interventional
  • Study Phase
  • Study Design  
  • Condition 
    Rett Syndrome
  • Intervention
    Programed
  • Publications
    The preliminary results of the project: 1.Rett syndrome need AAC intervention services; 2. AAC intervention need the communication partners to participate in learning, that will be more effective; 3.Since the severity of the children with Rett syndrome was varied, the needs of AAC service were also varied from case to case. Based on the finding of the study, those children encountered many opportunity barriers, including policy, practice, attitude, knowledge, and skill barriers.; 4. Multi-sensory natural circumstances are more effective; 5.Rett syndrome girls's social advantages makes group classes more effect; 6, Rett syndrome girls and communication partners have been significantly improved communication skills.
Recruitment Information
  • Recruitment Status 
    completed
  • Recruitment Posted Date
    2016-09-28
  • Estimated Completion Date
    2016-10-15
  • Completion Date
  • Sample size
    4
  • Gender
    woman
  • Accepts Healthy Volunteers
    No
  • Min Age
    2
  • Max Age
    8
  • Eligibility Criteria  
    1. Diagnosed Rett Syndrome with genetics 2. 2-8 years old
  • Contacts  
    info@rscri.org
Administrative Information
  • Number
    RSCRI-RP-0002
  • Has Data Monitoring Committee
  • Responsible Party
    Rett syndrome comprehensive reaserch institute
  • Study Sponsor
    Rett syndrome comprehensive reaserch institute
  • Collaborators
    Rett syndrome comprehensive reaserch institute;David Wang from Taiwan Donghua University ;Shenzhen SIQI Rehabilitation Center
  • Investigators
    Jia Li from RSCRI
  • Countries of recruitment and research settings
    Shenzhen China
Progress Information
  • First Posted Date  
    2016-09-28
  • Last Update Posted Date
    2017-10-31
  • Start Date  
    2016-10-24
  • Original Primary Outcome Measures  
    Communication skills assessment indicators
  • Change History
  • Completion Date
    2016-01-24
  • Outcome Measures  
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